For those of you who read Screw Bronze, you’ll know that Beth has a dream to go to Sakuracon in Seattle April 2-4th. Cheryl and I would love to make the dream come true (we want to go too!) and think with your help we can make that happen.
A few of her readers have emailed her to ask how they can help. So we thought it might be useful for everyone to see what our expenses are. I’ve also put deadlines next to items if applicable.
Convention Tickets - $150 by March 8th – Beth committed to sell books on Amazon/ebay to pay for these.
Hotel – 3 nights - $520, $30 parking – reserved! It’s Easter Weekend so we wanted to get our room before it’s too late. We’re staying at the Holiday Inn in downtown Seattle. It’s far enough away from the convention that it’s relatively quiet and will give us a good night’s sleep. It has suites and depending on the room type, free continental breakfast. It is also more reasonable than most other hotels.
Coho Ferry - round trip (Victoria – Port Angeles) - $151 – reserve ASAP! This year we need to take NDY, Beth’s power chair as she’s too weak to hold herself up all day. NDY will give her full back and head support and also has tilt and recline in case she has seizures or is too weak to stay upright. With a minor tilt she is cradled in the chair. We need to take our van as NDY won’t fit into Cheryl’s Jeep. We take the Coho ferry from Victoria to Port Angeles and then spend the night at Cheryl’s. Then we drive across the Olympic Peninsula and catch the Washington ferry to Seattle. The Coho has a limited number of reservations for each sailing and as this is Easter weekend we want reservations. The alternative is to arrive at the terminal and park the vehicle the night before and then walk/roll down the next morning several hours before the ferry leaves. This would really wear Beth out.
Gas - $60 – we’ll pick up the cheaper American gas in Port Angeles.
Washington Ferry – round trip (Bainbridge – Seattle) - $40 – need to take this ferry to get from the Olympic Peninsula to downtown Seattle.
Parking – $24/day reserved at least 30 days in advance (March 1st) at the Convention Centre = $75. This will cost about the same or less than getting a taxi that takes the three of us and NDY, Beth’s power chair. Having it at the Convention Centre means if the noise and people get too much for Beth (or Cheryl or I for that matter) we can sit in the van for a while and chill out. I need to check, but it may even let us come and go multiple times a day which would mean we could go back to the hotel for naps and return in the evening.
Food - $200 – we will buy groceries at the grocery store nearby our hotel and this will cover most of our meals. We usually have take out one night for a change.
Costume for Beth – to be determined – but it’s gotta be hot! Suggestions are welcome. One reader suggested this black lace dress with a corset bodice. Beth would also like me and Cheryl to dress up a bit. She has offered to share her hair accessories with me. We’ll see how that goes.
Spending money – Beth and Cheryl want to go back to the dealers who were selling $2 and $5 manga as well as the art books and sellers of Japanese merchandise. Last year Beth found some great gifts that she sent out over the course of the year – items (clothing, stationery, etc) with Boots the cat were really popular.
If you would like to help out, please let me know at linda.mcclung at shaw.ca or use the donate button to the right. If you are planning to join us at Sakuracon, could you email me as well so I can keep track so we make sure we don’t miss anyone?
Cheers
Showing posts with label Elizabeth McClung. Show all posts
Showing posts with label Elizabeth McClung. Show all posts
Sunday, February 14, 2010
Monday, December 14, 2009
Not Enough, Never Enough…
Go ahead and fill in the blank after enough. There are many words that will do. In my case I will just look at the three that I feel are having the biggest impact on our reality.
Help or Assistance
From the medical community we get delays and excuses, “You are too complicated. It’s not my area. I just feel we need to run more tests before I can sign off on anything.” No effort is made to address symptoms or provide for basic relief from pain, anemia or a hundred other things that detract from quality of life and therefore from quantity of live.
From the caregiver agency we get told, “This is all the hours you are allowed. Family has to fill in for the rest of your needs.” The fact that there isn’t an extended family available to help doesn’t matter. There are two of us in this family who are regularly here helping. Linda provides the majority of care as she also works full time. I come on weekends and do what I can to help Beth and give Linda a chance to have some non-caregiver time. The non-caregiver time for Linda often doesn’t work out as it takes both of us to care for Beth.
Money
If we had enough money we could have taken Beth to specialists early on in this illness and possibly have some treatments and diagnosis. If we had enough money we could provide a more disability friendly home environment. If we had enough money we could have all the hours of quality care giving we need. If we had enough money we could make more dreams realities and have more moments of joy. If we had enough money Linda and I could be on leaves of absence to be with Beth.
Time
There is never enough time. There’s not enough time to just spend together. There’s not enough time to help Beth complete tasks she wants to do. There’s not enough time outside of work when I can be here. There’s not enough time to know this amazing person. There’s not enough time to not feel constantly pressed for time and resentful of things/circumstances that use what time there is. There is never enough time for Linda and Beth to just be together. No matter how much time there is, it is never enough.
Help or Assistance
From the medical community we get delays and excuses, “You are too complicated. It’s not my area. I just feel we need to run more tests before I can sign off on anything.” No effort is made to address symptoms or provide for basic relief from pain, anemia or a hundred other things that detract from quality of life and therefore from quantity of live.
From the caregiver agency we get told, “This is all the hours you are allowed. Family has to fill in for the rest of your needs.” The fact that there isn’t an extended family available to help doesn’t matter. There are two of us in this family who are regularly here helping. Linda provides the majority of care as she also works full time. I come on weekends and do what I can to help Beth and give Linda a chance to have some non-caregiver time. The non-caregiver time for Linda often doesn’t work out as it takes both of us to care for Beth.
Money
If we had enough money we could have taken Beth to specialists early on in this illness and possibly have some treatments and diagnosis. If we had enough money we could provide a more disability friendly home environment. If we had enough money we could have all the hours of quality care giving we need. If we had enough money we could make more dreams realities and have more moments of joy. If we had enough money Linda and I could be on leaves of absence to be with Beth.
Time
There is never enough time. There’s not enough time to just spend together. There’s not enough time to help Beth complete tasks she wants to do. There’s not enough time outside of work when I can be here. There’s not enough time to know this amazing person. There’s not enough time to not feel constantly pressed for time and resentful of things/circumstances that use what time there is. There is never enough time for Linda and Beth to just be together. No matter how much time there is, it is never enough.
Sunday, August 30, 2009
Making the Dream Reality
It is finally happening… plans are falling into place and we are going to Hawaii in a few months! I normally plan vacations pretty thoroughly but this time there are more considerations as Linda and I also plan for Beth’s needs. I find myself making contingency plans to prepare for any breathing problems Beth will have when we go up Mauna Kea (13,000 feet in elevation). I surf the internet looking for all the disability friendly sight seeing opportunites on the Big Island. I have researched possible options which would allow Beth to snorkel with us. I make and remake packing lists to be sure nothing important is forgotten. I am looking forward to this trip and will cherish every moment and every memory.
On a weekly basis I see Beth grow weaker. I see her systems seemingly fail randomly and sometimes, just as randomly, begin functioning again. I am there with Linda as the pain steals her strength and her sanity. I watch as she uses sheer determination to push past the pain and LIVE rather than exist. I don’t have any idea how long it will be before Beth flies away. So, I work to build happy memories. I want Beth to know joy and love as much as possible. That’s why even when it seemed an impossible dream I started planning for the possibility of going to Hawaii.
Now that dream is coming together. We have our flights. We have most of our accommodations. We have a rental vehicle reserved. We are making lists of what we want to see. Linda and I are planning the budget to cover it all. We may eat a lot of peanut butter sandwiches before and during the vacation. We will certainly be stretched thin financially but, we will have the chance to make Hawaii memories with Beth and that is worth every sacrifice.
Monday, August 3, 2009
Elizabeth F. McClung needs you!!
In the past 18 months, over 300 people have asked to be part of the Postcard Project – requesting postcards for themselves or their loved ones. We send postcards to over 400 individuals.
Last week I sent an email to individuals we had email addresses for asking for their help. If you’ve received and responded to that email there’s no need for you to read further. This blog entry is intended to reach those people who have never given us email addresses or have changed their email addresses and haven’t let us know.
It’s hard to believe that it was only last year that Elizabeth started the Postcard Project. It was just going to be a one-time deal, sending postcards to any of her readers at Screw Bronze while we were in Japan for our grand adventure before Elizabeth’s health prevented further travels. Well, several thousand postcards later, she’s still at it.
Unfortunately, every few weeks a postcard is returned as the recipient has moved. I thought it was time to update our mailing list so that Beth’s postcards and the energy she put into creating them is not wasted.
The Postcard Project is a really important project for Beth. She’s intimately familiar with loneliness and wants to do her part to change the world, letting others know they are not alone. She does this with her postcards. At first she did it all on her own but as her health has steadily deteriorated she has needed more and more assistance. In fact, there are weeks where she doesn’t get to stamp or sticker at all, just matching cards to people and writing all the comments. But she’s adamant about her motto – no one gets left behind! And if that means she works through the night, or falls over when she’s putting her weight behind some of the larger animal stamps, so be it.
Now this kind of freaks me out, to put it mildly. And I struggle between supporting Beth with her dreams of helping others and trying to put a stop to the dream because of the cost to her health. But I know stopping the project has an emotional cost – the postcards are Beth’s way of reaching out to others – and stopping the project would leave a gaping hole in her ‘community’ and feeling of self-worth as a human being.
So, I have a couple of favours to ask…
My first request is for you to contact me to let me know what you thought of the postcards, whether they have made a difference in your or your loved one’s life, and whether you/they would like to continue receiving them. Please be honest. If they brighten your day or your week we want to keep sending them to you. If they’re about as interesting as the other stuff in your mailbox, please tell us that too, so we can take you off the list and help conserve Beth’s energy.
Send an email to me at Linda.mcclung at shaw.ca or leave a comment here. If we don’t hear from you by August 15, 2009 we will remove your name from the list, assuming our information is out of date or that you do not want to receive further postcards.
I want to stress again that Beth really wants to send you postcards if you still want them. Don’t feel guilty about receiving them if they make a difference to you. You’re the one we really want to reach. It’s just that we don’t hear back from most people so have no idea how they are received. And I’m honest enough to admit that I sometimes wonder what’s the point and wish Beth would spend her time elsewhere.
But reading the responses from last week’s email, my faith in the recipients has been restored. The comments reinforced the difference that Beth’s postcards have made in people’s lives. They’ve inspired me to give Beth more help with the cards and less negativity. I’m also going to compile many of the positive comments into a word document that Beth can turn to time and time again when she is feeling alone and of little value.
My second request is that, if you are able, please reciprocate and send Elizabeth a postcard or note back. Her personal mail has gone down to a slow dribble and she’s feeling the loneliness of being indoors and alone most of the time. Receiving mail from you would really keep her spirits up. We put return address labels on the postcards, but I’ve included our post office address in case you may have misplaced your cards.
Elizabeth McClung
PO Box 2560
Port Angeles, WA 98362
USA
Thanks for your time and I look forward to hearing from you.
Last week I sent an email to individuals we had email addresses for asking for their help. If you’ve received and responded to that email there’s no need for you to read further. This blog entry is intended to reach those people who have never given us email addresses or have changed their email addresses and haven’t let us know.
It’s hard to believe that it was only last year that Elizabeth started the Postcard Project. It was just going to be a one-time deal, sending postcards to any of her readers at Screw Bronze while we were in Japan for our grand adventure before Elizabeth’s health prevented further travels. Well, several thousand postcards later, she’s still at it.
Unfortunately, every few weeks a postcard is returned as the recipient has moved. I thought it was time to update our mailing list so that Beth’s postcards and the energy she put into creating them is not wasted.
The Postcard Project is a really important project for Beth. She’s intimately familiar with loneliness and wants to do her part to change the world, letting others know they are not alone. She does this with her postcards. At first she did it all on her own but as her health has steadily deteriorated she has needed more and more assistance. In fact, there are weeks where she doesn’t get to stamp or sticker at all, just matching cards to people and writing all the comments. But she’s adamant about her motto – no one gets left behind! And if that means she works through the night, or falls over when she’s putting her weight behind some of the larger animal stamps, so be it.
Now this kind of freaks me out, to put it mildly. And I struggle between supporting Beth with her dreams of helping others and trying to put a stop to the dream because of the cost to her health. But I know stopping the project has an emotional cost – the postcards are Beth’s way of reaching out to others – and stopping the project would leave a gaping hole in her ‘community’ and feeling of self-worth as a human being.
So, I have a couple of favours to ask…
My first request is for you to contact me to let me know what you thought of the postcards, whether they have made a difference in your or your loved one’s life, and whether you/they would like to continue receiving them. Please be honest. If they brighten your day or your week we want to keep sending them to you. If they’re about as interesting as the other stuff in your mailbox, please tell us that too, so we can take you off the list and help conserve Beth’s energy.
Send an email to me at Linda.mcclung at shaw.ca or leave a comment here. If we don’t hear from you by August 15, 2009 we will remove your name from the list, assuming our information is out of date or that you do not want to receive further postcards.
I want to stress again that Beth really wants to send you postcards if you still want them. Don’t feel guilty about receiving them if they make a difference to you. You’re the one we really want to reach. It’s just that we don’t hear back from most people so have no idea how they are received. And I’m honest enough to admit that I sometimes wonder what’s the point and wish Beth would spend her time elsewhere.
But reading the responses from last week’s email, my faith in the recipients has been restored. The comments reinforced the difference that Beth’s postcards have made in people’s lives. They’ve inspired me to give Beth more help with the cards and less negativity. I’m also going to compile many of the positive comments into a word document that Beth can turn to time and time again when she is feeling alone and of little value.
My second request is that, if you are able, please reciprocate and send Elizabeth a postcard or note back. Her personal mail has gone down to a slow dribble and she’s feeling the loneliness of being indoors and alone most of the time. Receiving mail from you would really keep her spirits up. We put return address labels on the postcards, but I’ve included our post office address in case you may have misplaced your cards.
Elizabeth McClung
PO Box 2560
Port Angeles, WA 98362
USA
Thanks for your time and I look forward to hearing from you.
Tuesday, December 2, 2008
Autographed Copies of Zed
Here we go - our first fund-raising activity...
Beth has 12 copies of her novel, Zed, which she is willing to part with. And, she's also happy to put in an inscription as long as it's not pages long! She has to save her writing hand for her postcards after all!
And, contrary to what Beth mentioned in one of her previous blogs, we will not be offering deluxe inscriptions written in blood. No blood of any kind - you hear that Beth! Just step away from the knives...
Reviews of the novel are at the bottom of this blog entry.
If you were wanting a copy of your very own or to give a Christmas present for someone who doesn't mind having nightmares, here's how you can get it...
Make a donation using the Paypal button on this page. In the notes section, let us know it's for Zed and what inscription you'd like.
We're selling the books for $15US plus shipping.
Shipping rates are as follows:
US - $2.50 1st Class
Canada - $3.75 Air or $9.95 Priority Mail
Europe & Australia - $8.65 Air or $11.95 Priority Mail
For those of you who haven't heard about Zed, here's the blurb of the novel for you...
Zed is having a bad day. She's 12 and there's someone around who's killing kids, which she doesn't have time for. Already today, she's knifed a rapist, traded with half the drunks and addicts in town, talked to the dead, bargained with a sociopath, and extracted crucial information from a mental patient, and she hasn't even left the building. Welcome to The Tower, an urban development project no city wants to lay claim to; a place to steer clear of if at all possible, but if you can't, you'll fit right in. This vivid, claustrophobic novel is about madness, survival, and crumbling institutions, in the spirit of J.G. Ballard's High Rise or Iain Banks' The Wasp Factory.
Also some reviews...
Zed is a tale to be pondered by all those who wield power over the vulnerable. McClung's plot twists and images wrestle the emotions before the intellect can pin them down, but when her message at last emerges from the blood and bedlam the effect is devasting: Terror begins at home. Then it grows.—The Globe and Mail (Globe & Mail )
One of the best books of 2006: a piercent lament for all kids who are ill-used by their keepers. One of the top 100 books of 2006.—The Globe and Mail (Globe and Mail )
The combination of near future dystopia and murder mystery means that one is drawn relentlessly along toward a conclusion which, even if it doesn't seem completely justified, is fitting for such a vivid and explosive book.—Monday Magazine (Monday Magazine )
A humorous, but disturbing read.—The Vancouver Sun (The Vancouver Sun )
A masterfully written first novel.... Zed, both the book and protagonist, is truly original ... the definition of provocative, if you can handle it.—Zoe Whittall, NOW Magazine (Zoe Whittall Now Magazine )
A hellishly engaging novel ... Zed not only merits cinematic interpretation, it demands it.—Rain Taxi (Rod Smith Rain Taxi review of )
Her debut novel Zed doesn’t seem to be classified as a "horror" but holy crow, this book sufficiently filled my horrific quota. A NOW review tweaked my interest on this one and I wasn’t disappointed. Despite being written from the point of view of a 12 year old girl, Zed, this book is most definitely not for kids. Heck, this book is not for most adults. Murder, rape, addiction, sociopaths ... all that and more, navigated by young Zed within the confines of an inner city project. Zed is appalling yet believable. I can't wait for Ms. McClung's next book! —CBC Radio (CBC Radio )
McClung's dark, wicked sense of humor shows through as she chronicles Zed's profoundly disturbing exploits. Shocking and complete with alarming psychological insights, Zedis like nothing you've read before. —Pages magazine (Pages magazine )
Zed is the kind of work about which the adjective 'disturbing' usually applies. That's really an understatement.... It is a riveting, sometimes scary work.... Zed is laced with the kind of wit that could take the rust off your handlebars. —University of Toronto Quarterly (University of Toronto Quarterly )
Beth has 12 copies of her novel, Zed, which she is willing to part with. And, she's also happy to put in an inscription as long as it's not pages long! She has to save her writing hand for her postcards after all!
And, contrary to what Beth mentioned in one of her previous blogs, we will not be offering deluxe inscriptions written in blood. No blood of any kind - you hear that Beth! Just step away from the knives...
Reviews of the novel are at the bottom of this blog entry.
If you were wanting a copy of your very own or to give a Christmas present for someone who doesn't mind having nightmares, here's how you can get it...
Make a donation using the Paypal button on this page. In the notes section, let us know it's for Zed and what inscription you'd like.
We're selling the books for $15US plus shipping.
Shipping rates are as follows:
US - $2.50 1st Class
Canada - $3.75 Air or $9.95 Priority Mail
Europe & Australia - $8.65 Air or $11.95 Priority Mail
For those of you who haven't heard about Zed, here's the blurb of the novel for you...
Zed is having a bad day. She's 12 and there's someone around who's killing kids, which she doesn't have time for. Already today, she's knifed a rapist, traded with half the drunks and addicts in town, talked to the dead, bargained with a sociopath, and extracted crucial information from a mental patient, and she hasn't even left the building. Welcome to The Tower, an urban development project no city wants to lay claim to; a place to steer clear of if at all possible, but if you can't, you'll fit right in. This vivid, claustrophobic novel is about madness, survival, and crumbling institutions, in the spirit of J.G. Ballard's High Rise or Iain Banks' The Wasp Factory.
Also some reviews...
Zed is a tale to be pondered by all those who wield power over the vulnerable. McClung's plot twists and images wrestle the emotions before the intellect can pin them down, but when her message at last emerges from the blood and bedlam the effect is devasting: Terror begins at home. Then it grows.—The Globe and Mail (Globe & Mail )
One of the best books of 2006: a piercent lament for all kids who are ill-used by their keepers. One of the top 100 books of 2006.—The Globe and Mail (Globe and Mail )
The combination of near future dystopia and murder mystery means that one is drawn relentlessly along toward a conclusion which, even if it doesn't seem completely justified, is fitting for such a vivid and explosive book.—Monday Magazine (Monday Magazine )
A humorous, but disturbing read.—The Vancouver Sun (The Vancouver Sun )
A masterfully written first novel.... Zed, both the book and protagonist, is truly original ... the definition of provocative, if you can handle it.—Zoe Whittall, NOW Magazine (Zoe Whittall Now Magazine )
A hellishly engaging novel ... Zed not only merits cinematic interpretation, it demands it.—Rain Taxi (Rod Smith Rain Taxi review of )
Her debut novel Zed doesn’t seem to be classified as a "horror" but holy crow, this book sufficiently filled my horrific quota. A NOW review tweaked my interest on this one and I wasn’t disappointed. Despite being written from the point of view of a 12 year old girl, Zed, this book is most definitely not for kids. Heck, this book is not for most adults. Murder, rape, addiction, sociopaths ... all that and more, navigated by young Zed within the confines of an inner city project. Zed is appalling yet believable. I can't wait for Ms. McClung's next book! —CBC Radio (CBC Radio )
McClung's dark, wicked sense of humor shows through as she chronicles Zed's profoundly disturbing exploits. Shocking and complete with alarming psychological insights, Zedis like nothing you've read before. —Pages magazine (Pages magazine )
Zed is the kind of work about which the adjective 'disturbing' usually applies. That's really an understatement.... It is a riveting, sometimes scary work.... Zed is laced with the kind of wit that could take the rust off your handlebars. —University of Toronto Quarterly (University of Toronto Quarterly )
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