Hmmm, where to start?
It has been a long and difficult month since I last wrote. I am exhausted emotionally, mentally and physically. Here’s a big thank you to those of you who have expressed your concern and for your offers of help.
I am taking some leave from work and want to focus on taking better care of myself – resting, getting a stable eating and sleeping routine and learning how to cope with life’s stressors.
On the medical front for Beth, one of my priorities for the next few weeks is to get an appointment for Beth in Seattle. I’ve got to put together a copy of all the medical test results I’ve collected over the past two years from various GPs and specialists and send them to the Centre (her GP may have missed a few). We also need to get another series of blood tests and Beth needs to get an EEG on Tuesday. We are trying to collect a little more recent data for the Centre which hopefully will indicate trends in her anaemia and endocrine system.
I received an electronic circular from the Inogen oxygen concentrator manufacturer offering a 30-day free trial for the concentrator. I need to order it before the end of November, which would make going to Seattle in December a feasible option. Hopefully, before the 30 days are up we can find out whether Pacific Blue Cross will let us order from the US manufacturer.
My second medical priority for Beth is to search out a new GP – one who is willing to try treating some of Beth’s conditions. I am hoping our visit to Seattle will result in a treatment plan which will make a GP’s job easier.
At some point Cheryl and I will be posting fundraiser opportunities on this blog. We may even be able to satisfy some Christmas present obligations for you. Please stay tuned.
Sorry, not a very exciting read today. My brain is fried and the words are not eloquent, but it was important to me to give you all an update.