Hello, Cheryl here and I want to talk about Beth’s most recent post on Screw Bronze.
Beth did an amazing thing for someone who is fiercely independent and has always sacrificed herself for others. She is asking for help. That simple act of making herself vulnerable took an incredible amount of courage. She doesn’t ask lightly but she wants to live and she needs help to do that.
I know that many of you are hesitant to commit to one of the “chores” Beth has outlined because you are afraid of letting her down. I understand. I fear letting her down too. I look at how much she has gone through in her life and I don’t ever want to be in the group of people who caused her any pain and suffering. I just refuse to let that fear keep me from acting.
Abi suggested using a network system where a group of people agree to do a chore and then there is someone to cover when one person is unable to keep the commitment on occasion they can ask a member of their network to fill in for that time. I think it is a brilliant idea and will help people not over use their spoons or energy crystal lines.
Beth truly needs the help to change her habits. She keeps pushing herself at the same levels she did 3 months ago. Truth is she doesn’t have the reserves to do that. She doesn’t have the reserves to push herself at the levels of 3 days ago. She is rapidly weakening. I hope the Seattle doctors and some other referrals we are working on will get her some treatment to improve her quality of life and help with energy levels and pain management. We will keep you posted on that but Beth needs help NOW.
Yesterday Beth had a collapse. She required high flow oxygen from a non-rebreather mask (gets more pure oxygen into the patient) and I had to use the ambibag to breathe for her for a while. What concerned me was that her pulse was slowing and getting rapidly weaker. I was planning scenarios in case we had to do CPR while the ambulance came. I was wondering if this was going to be the end and praying that it wasn’t. Happily, getting the high oxygen concentration into her blood allowed her body to recover. Her heart rate is back to her normal for now. What brought on the collapse? We had a conversation. The simple act of talking for 20 minutes depleted her oxygen levels to the point where her body shut down and she was on low flow supplemental oxygen at the time.
I know we are going to lose Beth. I know it is going to be sooner than I am ready for. I know this loss is coming and I ultimately can’t stop it. That doesn’t stop me from doing what is necessary to let Beth live and LIVE as long as possible. Towards that end I keep trying to stack the deck in my favor. By having you help take on the tasks and make the commitments Beth has asked for, I can do a lot to stack that deck.
Here’s a video by Train that I think fits the situation. Listen, read Beth’s blog, search your heart and help as you can.